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ashley

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It’s International Albinism Awareness Day! • Let’s boost awareness, debunk damaging stereotypes, and just be kind to everyone, yes? Because, honestly, all of us have something that makes us different, unique, and beautiful - what’s your thing? • Let’s chat about mine - albinism. ✨I struck the genetic lottery because albinism affects about 1 in every 17,000 people. ✨albinism is a recessive genetic condition - so both parents have to carry the gene and, even then, there is only a 25% chance that the child will have albinism (shout out to the Punnett square) ✨there are many types of albinism - ocular, HPS, and oculocutaneous ((hey, that’s me!) ✨albinism causes a lack of pigment in the hair, skin, and eyes. Also, a visual impairment (there had to be some sort of trade off for this amazing hair, right?) ✨the visual impairment is different for everyone. A lot hover around the 20/200 line which is also referred to as being “legally blind.” ✨albinism can be present in any ethnicity. And hair/eye color can vary. ✨people with albinism can’t tan. Literally, it just doesn’t happen. We can be in the sun, but just need to be extra smart about it (SPF is the real MVP) ✨most people with albinism are sensitive to light or “photophobic” (aka: always sunglasses. Always) ✨tragically, there are still parts of the world where albinism is extremely misunderstood. This results in harassment, fear, isolation, amputation, and sometimes lives. It’s awful, and as a community, we are making strides to put an end to this reality. ✨personally, I’ve had some high highs and low lows as a result of this condition. However, I wouldn’t change it for the world. I can’t imagine a life without the incredible community I’m part of and consider family. They make me better, and I’m extremely thankful for the perspective that albinism has given me. Let the journey continue! • Still have questions? Ask me anything! 💜 #albinism #IAAD #albinismawareness #nofilter #albino
It was a turtle-y fantastic morning for a 5k! And shoutout to the stranger that though we won - you don’t even realize how funny you are, sir! 🐢 #turtletrot #gaaquarium #5k #atl
Baby S, what we lack in pigment we make up for in love. And you, sweet girl (🤞🏻) are already so dearly loved!
Happy half dozen to my favorite guy 🍩 I’m not sure what you said in this moment, but I do know that you make me smile like this often, and I couldn’t be more grateful. Cheers to a lifetime 💕
Watch out, world - this girl’s got big, amazing plans! Couldn’t be more proud of you, sista! 🎓
Just a little 10 year #tbt because all of us need a good chuckle. Hey, @m__at__the__w want to go to prom again? This time rocking the white facial hair?
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